Volume 1: Why Patient Narratives Matter
Prepared for:
Agency for Healthcare Research and Quality
5600 Fishers Lane
Rockville, MD 20857
www.ahrq.gov
Contract Number HHSP233201500022I/75P00119F37006
Prepared by:
Mark Schlesinger
Yale University
Rachel Grob
University of Wisconsin – Madison
Kelly Gleason
Johns Hopkins University
Christina Yuan
Johns Hopkins University
Helen Haskell
Mothers Against Medical Error
Traber Giardina
Baylor University
Kathryn McDonald
Johns Hopkins University
This project was funded under contract number HHSP233201500022I/75P00119F37006 from the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services. The authors are solely responsible for this document’s contents, findings, and conclusions, which do not necessarily represent the views of AHRQ. Readers should not interpret any statement in this product as an official position of AHRQ or of the U.S. Department of Health and Human Services. None of the authors has any affiliation or financial involvement that conflicts with the material presented in this product.
Public Availability Notice. This product is made publicly available by AHRQ and may be used and reprinted without permission in the United States for noncommercial purposes, unless materials are clearly noted as copyrighted in the document. No one may reproduce copyrighted materials without the permission of the copyright holders. Users outside the United States must get permission from AHRQ to reprint or translate this product. Anyone wanting to reproduce this product for sale must contact AHRQ for permission.
Citation of the source is appreciated.
Suggested citation: Schlesinger M, Grob R, Gleason K, Yuan C, Haskell H, Giardina T, McDonald K. Patient Experience as a Source for Understanding the Origins, Impact, and Remediation of Diagnostic Errors. Volume 1: Why Patient Narratives Matter. Rockville, MD: Agency for Healthcare Research and Quality; June 2023. AHRQ Publication No. 23-0040-2-EF.