Cystic Fibrosis Newborn Screening Practice Based Research Network
Status:
Active
Registered Date:
PBRN Acronym:
CFNBS
PBRN Type:
Pediatric Network (at least 75% are pediatricians or specialize in child health)
Network Category:
Established
City:
Richmond
State:
California
Zip:
94804
Main Phone:
1-510-412-1550
PBRN Director Name:
Marty Kharrazi
PBRN Director Email:
Marty.Kharrazi@cdph.ca.gov
Geographic Coverage:
State-wide
Practice/Clinic Location(s):
California
Network Founded:
2007
PBRN Mission Statement:
The Cystic Fibrosis Newborn Screening Practice Based Research Network is committed to protecting and improving the health of all infants by assuring all newborns screening positive for cystic fibrosis receive appropriate screening, follow-up, and medical services.
Current or Past Research Interests / Health Conditions:
Behavioral health
Children's health issues
Depression and other mental health disorders
Diabetes (Type 1 or 2)
Health literacy
Pregnancy and childbirth, including preterm birth
Pulmonary disease/asthma
Current or Past Research Interests Comments :
Children's health issues: Impact of genetic diagnosis; Depression and other mental health disorders: Affect of Newborn Screening on parents
Approximate Number of PBRN Member Licensed Clinicians:
100
Approximate Number of Practices or Clinics:
15
Approximate Number of Patients:
8000
